10 year old girl raises money for suction machine for Stickler Syndrome

The family of ten- year- old girl with a genetic syndrome have raised enough money for a new machine to help breath.

Ronni Hauge, of Parsons Cross, was born with Stickler Syndrome and is partially deaf and has had tracheostomy to help her breath for the next seven years.

Stickler Syndrome is a genetic condition that can affect breath, eye sight, hearing and joints.

Her mother, Danielle Hauge, 41, is delighted to have raised the money for the machine through Go Fund Me.

Ronni’s old machine provided by the NHS was too big and was essentially “Like a large suitcase she had to carry everywhere.” which prevented her from living a normal life.

 Friend Angela Baker, 51, who organised the fundraiser, said: “She couldn’t even go to theatre easily as her case needed to be next to her and it took the seat space up.”

Ronni loves gymnastics, and carrying the machine prevented or proved participating difficult as well.

Her mum, Danielle said: “We are all so proud of Ronni as she get’s on with everything and doesn’t let her disability get in the way. We try to do as much as we can to make her life as normal as possible.”

Since receiving the new machine, Danielle has described  it as “life changing” at making accessibility easier, particularly around theatres and theme parks.

Her carer, Jess Baker, is also “very excited” about receiving this new machine, as Ronni will be able to visit so many more places, and not miss out on socialising with other children her age.

The fundraiser is still available here for donations, as the family are now raising money to treat Ronni out to some theatres in London and a trip to Thorpe Park this summer.

Check out the Fundraiser here: https://www.gofundme.com/f/to-purchase-ronni-a-compact-suction-machine

 

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